IBM Inclusion Body Myositis PAIN Sleepless nights Weight loss

IBM Inclusion Body Myositis PAIN Sleepless nights Weight loss

not getting no where with IBM Only chronic pain, fatigue, and not sleeping for months as usual, and now large weight loss. lost around 25kg. the NHS Is a utter joke and seeing what they have done for me and what they did to my wife RIP. Its no fit for purpose the most useless institution in the UK, There good in A&E Though at giving water to dehydrated drunks. i farking detest the place. i would rather be dead than have to use the NHS. National Hopeless Service.

So for me its carry on taking Doz of tablets meds pickling my Liver thats the sum totyal of doing zip for my condition.

Pain Pain

having lots of trouble getting out of bed after a sleep if thats possible the pain is horrific using any muscles at all when they have not been used all night its bang ouch from the muscles its like what are you doing we've not been used all night leave us alone.