IBM Inclusion Body Myositis and PAIN.

NHS Tomorrow for Pain management a waste of time for me and them - Neuro doc sent this to the doc i see tomorrow . Inclusion Body Myositis its clear that the pain is more effecting the joints now and muscles i have more evident forearm Scalloping its easy to overcome long finger flexors, reanalysed biopsy showed COX Muscle fiber deficencey plus other supporting evidence thats been gathered  Its IBM i have pitting and sacral oedema to be checked for left ventricular but thinks this is due to my asthma and check for incipent right heart failure and no point it giving any other immunosuppression meds

Constant inflammation PM / IBM – Polymyositis, Inclusion Body Myositis. driving me nuts NHS Not done anything to help the 24/7 pain

Pain Pain

having lots of trouble getting out of bed after a sleep if thats possible the pain is horrific using any muscles at all when they have not been used all night its bang ouch from the muscles its like what are you doing we've not been used all night leave us alone.

And the pain goes on. Polymyositis Daily Pain / IBM / Inclusion Body Myositis pain

Its continues chronic pain cant stand much more nothing helps really struggling to get out of bed im frozen in a morning. standing from the seated position now a real struggle, any walking is a no no its ponds the hell out of my muscles, again the only thing that slightly helps is do nothing don't move a muscle this causing other problems odema (water) on legs ankles because i'm not moving about, GP Pulling there hair out dont know what to do for me they not had any recent info from consultants on what to give me passed from doc to doc not getting any where fast apart from pain pain pain. grrrr.

Arthritis, Asthma, Chronic Joint Pain, severe sweating, Diary Of Daily Pain, Fatigue, Gout, Hair Loss, inclusion body myositis, morphine, Muscle Twitching, Myositis, polymyositis, Raised CPK, IBM.