IBM Inclusion Body Myositis PAIN Sleepless nights Weight loss

IBM Inclusion Body Myositis PAIN Sleepless nights Weight loss

not getting no where with IBM Only chronic pain, fatigue, and not sleeping for months as usual, and now large weight loss. lost around 25kg. the NHS Is a utter joke and seeing what they have done for me and what they did to my wife RIP. Its no fit for purpose the most useless institution in the UK, There good in A&E Though at giving water to dehydrated drunks. i farking detest the place. i would rather be dead than have to use the NHS. National Hopeless Service.

So for me its carry on taking Doz of tablets meds pickling my Liver thats the sum totyal of doing zip for my condition.

And the pain goes on. Polymyositis Daily Pain / IBM / Inclusion Body Myositis pain

Its continues chronic pain cant stand much more nothing helps really struggling to get out of bed im frozen in a morning. standing from the seated position now a real struggle, any walking is a no no its ponds the hell out of my muscles, again the only thing that slightly helps is do nothing don't move a muscle this causing other problems odema (water) on legs ankles because i'm not moving about, GP Pulling there hair out dont know what to do for me they not had any recent info from consultants on what to give me passed from doc to doc not getting any where fast apart from pain pain pain. grrrr.

Arthritis, Asthma, Chronic Joint Pain, severe sweating, Diary Of Daily Pain, Fatigue, Gout, Hair Loss, inclusion body myositis, morphine, Muscle Twitching, Myositis, polymyositis, Raised CPK, IBM.

It's Hard

Really struggling with being alone very very hard indeed and after two years of tests and meds not getting very far with polymyositis IBM don't know what to do next moving on not that easy