IBM Inclusion Body Myositis PAIN Sleepless nights Weight loss

IBM Inclusion Body Myositis PAIN Sleepless nights Weight loss

not getting no where with IBM Only chronic pain, fatigue, and not sleeping for months as usual, and now large weight loss. lost around 25kg. the NHS Is a utter joke and seeing what they have done for me and what they did to my wife RIP. Its no fit for purpose the most useless institution in the UK, There good in A&E Though at giving water to dehydrated drunks. i farking detest the place. i would rather be dead than have to use the NHS. National Hopeless Service.

So for me its carry on taking Doz of tablets meds pickling my Liver thats the sum totyal of doing zip for my condition.

Ramble #16 Myositis on my Journey for Pain relief

Sunday A Day of doing nothing resulted in nothing, as much pain as normal in my knees again my Left knee / leg is the worst for what good it is i might have well lose the Left leg, i cant stand up from the seated position i'm sure my calfs have lost some muscle mass, the right leg isnt as painfull as the left leg at all, the funny thing is my left leg pain is horrific but has little twitching, the right leg isnt very painful but the muscles in that leg do a Dance the calf muscles twitch wriggle all day. in that leg,
not a great vid my right Leg twitching from a while ago http://youtu.be/0FRjbitrFLc
So i'll continue with the regime tablets that dont kill the paim Amitriptyline can help me sleep if i dont move
too much when i get in bed statue sleeping lol.