IBM Inclusion Body Myositis and PAIN.

NHS Tomorrow for Pain management a waste of time for me and them - Neuro doc sent this to the doc i see tomorrow . Inclusion Body Myositis its clear that the pain is more effecting the joints now and muscles i have more evident forearm Scalloping its easy to overcome long finger flexors, reanalysed biopsy showed COX Muscle fiber deficencey plus other supporting evidence thats been gathered  Its IBM i have pitting and sacral oedema to be checked for left ventricular but thinks this is due to my asthma and check for incipent right heart failure and no point it giving any other immunosuppression meds