Ramble #16 Myositis on my Journey for Pain relief

Sunday A Day of doing nothing resulted in nothing, as much pain as normal in my knees again my Left knee / leg is the worst for what good it is i might have well lose the Left leg, i cant stand up from the seated position i'm sure my calfs have lost some muscle mass, the right leg isnt as painfull as the left leg at all, the funny thing is my left leg pain is horrific but has little twitching, the right leg isnt very painful but the muscles in that leg do a Dance the calf muscles twitch wriggle all day. in that leg,
not a great vid my right Leg twitching from a while ago http://youtu.be/0FRjbitrFLc
So i'll continue with the regime tablets that dont kill the paim Amitriptyline can help me sleep if i dont move
too much when i get in bed statue sleeping lol.

Ramble #15. Myositis on my Journey for Pain relief

Morning, after yesterday’s Day of Hell yep i had a Awful night stiff as a board had to lay perfectly still until i got some sleep, getting out of bed was funny to a degree trying to find a comfortable position to try and stand up lol, Legs are still red its like sunburn above the sock line and goes up to the top of my thighs, swelled legs and knees, awful joint pain still, shoulder joints and arms feel sore painful this morning morphine taken,its going to be a long weekend

Ramble #14 Myositis on my Journey for Pain relief

Well what a day. Worst day in months the joint knee pain is unbearble. eye watering pain, this morning i took the morphine slow release i’m due to take it again now, really fed up with this pain no hospital seems to know what to do, its Easter i’ll have to wait until Tue to try and ring people to chase appointments up. no one should suffer pain like this

Ramble #13 Myositis on my Journey for Pain relief

Tried a day of total rest, not helped at all same story this morning awful joint pain no further fowward awaiting for hospital respopnse to my E-Mail, been at this for nigh on 8-9 months now asking for help and pain relief.

Ramble #12 Myositis on my Journey for Pain relief

Very tired didnt get to sleep until 2am, legs red and unusable this morning Chronic knee pain as usual just got to hope Doctors do something WHEN I FINALLY get to see one that will deal with the pain and other problems, Myositis a pain for sure

Ramble #11 Myositis on my Journey for Pain relief

had a bad Sunday Chronic pain, Another day of using the walking sticks, sent a E-Mail to hospital chasing info up when will they do something for the pain, GP Said no more morphine, he cant up it no more feel awful bad chest cant breath, on antibiotics and prednisone steroids again, 4-5 hrs sleep so tired fatigued, legs painful just to the touch, another day of sat and doing nothing.

Ramble #10 Myositis on my Journey for Pain relief

Well what a morning Pregabalin, Amitriptyline, morphine, onboard last night, Pregabalin, morphine, prednisone, onboard this morning and i’ve never been in a much pain,nothing is controlling it.the only thing that helps the pain is stitting still like a statue,i cant believe myositis can be this painful ? yes the Emg Result suggested myositis, i just hope there going down the right track and its nothing more serious, i dont feel ill just in so much pain, no weight loss etc had lots of bloods and tests etc all clear,

Ramble #9 Myositis Journey for pain relief

Seen GP Yesterday no more morphine he cant up it now, GP phoned Neuro specialist Secretary for an Emergency appointment a waste of 20 mins got nowhere, the CHRONIC PAIN Continues its been 8 months of this now Chronic pain that gradually built up knee pain, red legs, sweating, muscle twitching, EMG results Suggest Myositis, (such a painful thing for me) been prescribed prednisone 40mg daily for a week. when will i every get the correct treatment for my condition morphine MST Continuos 60mg not helping any at all. i really bad night no sleep awful leg.knee.pain, been out for any hour with the camera, i’ll pay for it later with the pain. its my only thing to take my mind off the pain.

Ramble #8 Been a While Got a diagnosis Myositis.

well after weeks of chronic pain and tests
finaly been told i've got Mysositis and need biopsy to see which type of myositis i have and i'm on Morphine now. not that its doinhg a lot.

Chronic pain all over my body and my necks started to be stiff very stiff as i cant move without severe pain
ther journey continues. : (